Over the weekend I attended a conference hosted by the Lymphoma & Leukemia Society. Turns out my UCSF doctor was one of the speakers. So not only was I only able to learn a fair deal about Follicular Lymphoma but I was able to accost find him afterwards and speak about the updated diagnosis. His…

Read More Lymphoma society conference; a holding pattern

I got a call yesterday from the Stanford new patient coordinator. The second pathology report is in and I do qualify for the study. She set me up for a meeting Tuesday. This must mean they think this is DLBCL, not follicular lymphoma.  The pessimist (realist?) in me considers the following totally hypothetical & unsubstantiated…

Read More I qualify for the CAR-T trial at Stanford

How much uncertainty is tolerable when making a life and death decision? And what are the forcing-functions on that decision? I really like what Jeff Bezos says in one of his annual letters about one-way versus two way doors: 2-way doors ought to be made with a bias towards speed over perfection (you can always…

Read More decisions – getting closer and UCSF second opinion