I got a call yesterday from the Stanford new patient coordinator. The second pathology report is in and I do qualify for the study. She set me up for a meeting Tuesday. This must mean they think this is DLBCL, not follicular lymphoma.  The pessimist (realist?) in me considers the following totally hypothetical & unsubstantiated…

Read More I qualify for the CAR-T trial at Stanford

How much uncertainty is tolerable when making a life and death decision? And what are the forcing-functions on that decision? I really like what Jeff Bezos says in one of his annual letters about one-way versus two way doors: 2-way doors ought to be made with a bias towards speed over perfection (you can always…

Read More decisions – getting closer and UCSF second opinion

I’ll get results as soon as tomorrow or early next week. Meantime I’ve been getting second opinions setup. It’s time consuming. So far I’ve got a meeting setup with Dana-Farber in Boston. After some back-and-forth we agreed to do this by phone (it was originally supposed to be in-person). This will happen once the results…

Read More Waiting for biopsy results (been here before)