I’ll get results as soon as tomorrow or early next week. Meantime I’ve been getting second opinions setup. It’s time consuming. So far I’ve got a meeting setup with Dana-Farber in Boston. After some back-and-forth we agreed to do this by phone (it was originally supposed to be in-person). This will happen once the results…

Read More Waiting for biopsy results (been here before)

Today is the day – heading into the hospital shortly for the biopsy. Eli is here helping support me – he flew in from Boulder last night and it’s amazing to have his company. I’m still anxious to get this done. Getting this scheduled during the holidays has not been easy. I’m also nervous in…

Read More Biopsy today

Not great news. The first line treatment hasn’t worked. While the cancer has shrunk significantly, based on the CT/PET results it’s still there and active. It’s in 2 locations – so far as I understand these are sites that were already active. That means cells are either mutated, resistant, or maybe something else. I now…

Read More The test results (a punch in the gut)

This round has been brutal. The body and brain are not on the same page: brain wants to GO, body needs to rest. Body is winning. I can feel the cumulative effects of repeatedly poisoning myself. With a few exceptions I’ve been living life within a several foot radius of my bed though I have…

Read More Round 6, day 8